Hi there,

I will be participating in Stadium Stomp 2018 this winter and will be climbing thousands of stairs within the Adelaide Oval for my chosen charity, Rett Syndrome  Association.   

Rett syndrome (RTT)  is seen almost exclusively in females and is a genetic disorder.  For most children, their early development appears normal but then slows down or suddenly halts.

This  is marked by  non-purposeful repetitive hand movement, reduced eye contact,  night laughter,  screaming,  problems with walking,  loss of communication ability,  seizures, breathing problems (breath holding, fast breathing, and/or air swallowing).  As the child grows, most, if not all of, the following, may become apparent: muscle stiffness,                      cold bluish-red feet and legs and/or small feet,  chewing/swallowing difficulties                      abnormal sleep patterns  , teeth grinding , spinal curvature, growth retardation                      decreased body fat and muscle mass, tip-toe walking and  decreased mobility.  Apraxia (dyspraxia) i.e., where the brain has difficulty putting in place the automatic planning needed to carry out voluntary movement, is the most fundamental and severely handicapping aspect of RTT.  The degree of disability varies considerably among affected children., 

There are some positive results happening in the lab  and I am hopeful one day a cure will be found. 

I would love it if you supported my efforts by making a secure donation. I would also really appreciate it if you could share my page above or comment below so more people are aware of Rett Syndrome and aid research for a cure.

This is an association close to my heart.

Click 'Donate Now' to make a secure online donation. 

Thanks so much for your support!